Monday, April 15, 2013
Sunday, April 14, 2013
Friday, April 5, 2013
Wednesday, April 3, 2013
Easter
I’m getting more relaxed with our life as it is. I remember when we had our first child, there
was chaos at first, then we settled into a routine where certain things were
expected and then dealt with. Of course, this evolves over time, but it
wasn’t too hard to adapt. Then came
child number two. Chaos again. This chaos lasted much longer. The chaos evolved into different kinds of
chaos. Things are surprisingly
manageable these days. I hope I don’t
eat those words shortly.
Easter was fine. Todd
was up at his usual 4:30, Sean at about 5:30.
They were jacked on Easter Bunny sugar by 6 a.m. Literally ate all the candy in their baskets
by noon. I was a bit bummed about that
because their father and I usually graze the leftovers once the kids have had
their fill of holiday candy.
Kids did fine at my husband’s family party. Ate more candy, plus some proper food. Sean did parade nude through the party
because he was having trouble re-velcro-ing his pull-up after going to the
bathroom. Hell, he did that in a
restaurant once. Sean nudity in front of
family is no big deal.
They reluctantly went back to school today. Lots of protesting. They love school, their teachers, the bus,
their bus driver and bus aide, but I think going from a day of candy to a day
of work was what bothered them. They
have one week and one day of school and then we’re off to Disneyland…
Tuesday, April 2, 2013
Thursday, March 7, 2013
See My Ability Not My Disability
On March 1, 2013, my little
family had the pleasure of attending an event at the Oak Lawn Children’s Museum
called “See My Ability, Not My Disability.”
The evening was a celebration of our special children. This event was organized by Holly Simon, the
mother of a Down’s Syndrome child, who is also the person to thank for Holly
Days, a similar event at the Beverly Arts Center
in Chicago
My kids had a great time playing
at the museum, as they always do.
Healthy snacks were set up in the party room. There were vendors set up throughout the
second floor. I’d like to make mention
of a few…
I Am Who I Am. This 501(c)(3) charity gives baby blankets,
encouragement and support to newly born special children and their
families. An excerpt from the flyer I
received:
“…Can you imagine hearing the
words, ‘sorry’ after your child was born? Can you imagine the lack of eye
contact, the cold room and the feeling of doom?
I endured those moments. I am
here to erase those words from every delivery room. Nathaniel did and does not deserve an ‘I’m
sorry’. He and the entire special
community should be congratulated each and every day.”
One of the authors (Marianne
Walsh) of “Epic Mom: Failing Every Day a Little Bit More than You” was there
signing copies of the book. The book is a series of anecdotes any parent can
relate to, not just those of us in the special community. This book is available on www.amazon.com or to email for more
information epicmombook@gmail.com.
Literature from Giant Steps in
Lisle, Illinois
Last but not least – a lovely
young lady who happens to have Down’s had a table set up to sell jewelry she
had made and was also making jewelry on the spot. Her name is Kelly Neville. Her work is beautiful. I bought one of her bracelets. Her website is www.specialsparkle.com and she does
special orders as well as home parties.
It was a fun evening and a great
event. Holly Simon, thanks for the
inspiration! J
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