Those of us who are living with autism are all on this ride together. Traveling, dining and any other activities with special needs kids are challenging. I had trouble finding advice, so I decided to write about the things I want to read about. This is a place of thoughts, ideas, feedback, venting and most of all, support.
Tuesday, November 6, 2012
Thursday, November 1, 2012
Halloween 2012 Part 2
You know those moms who
meticulously plan every detail of their child’s costume starting in September? I’m not that mom. I wish I was that woman who handwrites lovely
thank you notes in a timely fashion and brings appropriately-themed hostess
gifts to every gathering. I’m not and
neither was my mother. Those women must
know about a secret eighth day of the week that the rest of us don’t know about
and that’s where they find the time to be all Martha Stewart. Sean wore a Spiderman costume for his first
Halloween that I bought online. Second
year, Todd joined us and the boys were the Scarecrow and Lion, costumes bought
online. Next, Sean was Thomas the Train (bought
on the Thomas website) and Todd was his engineer – found blue and white striped
overalls, a red bandana for his neck and a blue cap.
The following year, I was way
ahead. Every August, we go to the Day
Out with Thomas at the Illinois Railway Museum
in Union , Illinois . Nearby, there is an old-school theme park
called Wild West Town . Those cheesy low-budget theme parks are a
rarity these days and that’s a shame. I
was sad when Kiddieland in Melrose
Park , Illinois
closed. At least I got to bring my kids
to Kiddieland once. Anyway, in the gift
shop of Wild West Town, they had little Civil War uniforms. I bought one gray and one blue. On Halloween, I just drew makeup mustaches
and beard stubble on them and that was that.
This year, Sean decided he wasn’t
afraid of Halloween and wanted to dress up at about 9:00 p.m. on October 30th. I was still skeptical, knowing he could
easily change his mind by the time the bus arrived at 7:30 a.m. on October 31st.
Thank God for my friend Julie who
gave me a bunch of costumes and accessories that her children outgrew. This was in the summer of 2011. This collection has saved my butt in providing
me with costume options for my kids two years in a row now. Yes, I put together their costumes Halloween
morning. Last year, Sean was also afraid
until Halloween morning and Todd was having texture issues in regard to
clothing. Last year, Sean agreed to be
Woody from Toy Story at the last minute and in the costume collection, I also
found a soft gown, hat and a wand, so Todd was Mickey the Wizard from Fantasia.
Back to this year. First, I made sure
Sean was still up for wearing a costume.
He was. Yay! I found a velvet jacket, black knickers, a
pirate hat and a hook. Captain Hook! He was thrilled because he currently loves “Jake
and the Neverland Pirates” on Disney Junior.
He also said his teachers would be “so excited to see my costume!” Todd
was amiable to a costume as well. I
found bits and pieces of pirate wear and pieces of what appeared to be a Mulan
costume, so Todd was a pirate-ninja hybrid.
He’s non-verbal, but was in high spirits – giggling and flapping all the
way to the school bus, so I know he was happy.
Even if they weren’t going to
wear costumes, I bought four bags of candy to send for the school Halloween
party. I also bought festive-colored
baggies and sticker tags to put together gift bags. I was so tired the night before and since we
were throwing costumes together that morning, I just put the unopened bags in
their backpacks. I felt like such a
terrible non-Martha Stewart mom!
They had a great party at school
and went trick-or-treating around the school building to different classrooms
and offices.
Tim and the kids picked me up at
the train that evening. They love
watching the train pull in and then see me getting off the train. When my train leaves our station, Sean says, “the
train is now taking the nudders to their home, then going to sleep at Tidmouth
Sheds.”
They had a motherload of
candy. They were allowed to eat some and
the rest was hidden to be doled out gradually.
Sean has a habit of literally eating (anything, not just candy) until he
makes himself sick, so you need to cut him off.
After dinner (pizza and tater
tots, two of their favorite things), we all watched “Addams Family Values,” “The
Simpsons” and “It’s the Great Pumpkin, Charlie Brown.” The kids think that Snoopy is hilarious and
especially enjoyed the Red Baron sections of that tv special.
The upside of not putting up
decorations this year is I don’t have any to take down today. On to Thanksgiving. I refuse to put up anything Christmas until
Thanksgiving is over. I refuse to skip
over that holiday. What a wonderful
holiday that’s all about gratitude for the blessings in our lives! Since I didn’t get to decorate for Halloween,
I may go a little crazy with turkey and Pilgrim decorations this year. We are spending Thanksgiving in the Wisconsin
Dells this year at the Chula Vista Resort.
Since we will be eating at a restaurant on Thanksgiving Day, I will be
cooking a traditional Thanksgiving dinner at our place Sunday of Thanksgiving
weekend.
A blessed November to all! I will continue to post on events as they occur!
Thanks for reading! J
Halloween 2012 Part 1
Well, here we are again in November. Where do the months go? Yesterday, I reflected on Halloweens
past. When I was a kid, my mom would
make my costume. She loved the fact that
whatever character I chose to be, I wanted the glamour angle. If I was a witch, it had to be a glamorous
witch. If I was a gypsy, I had to be a
beautiful, glamorous gypsy. I also loved
girly-girl choices like can-can girl, princess, queen, Princess Leia,
ballerina. All three kids in my family
were bunnies for our first Halloween.
Mom would just sew a puff tail on a blanket sleeper and sew ears onto a
hat. Done! We’re still in our condo that won’t sell, so
we never have any trick or treaters.
There’s also no sidewalk on most of our street, so we have to drive the
kids to trick or treat, usually to the homes of family and friends.
Last year Sean was scared of some
things Halloween. This year he was
scared of all things Halloween. He
wouldn’t let me put up our usual decorations and orange lights. I tried to tell him wearing a Halloween
costume is no different from when he wears a costume in a play. Nope.
Couldn’t even bribe him with the promise of candy and other treats. He has, however, been enjoying the
Halloween-themed episodes of his favorite shows on Nick and Disney Junior. He even enjoyed a series featuring a ghost
named Spookly (reminiscent of Casper
the Friendly Ghost) and his friend the Square Pumpkin.
This past weekend (and this
coming weekend, stay tuned for shameless plug to follow in another post), my
husband, Sean and I were (are) in a production of “Music Man. ” After the Sunday matinee last week, there was
a Halloween-themed cast party. I was
worried. We got there and Sean was
completely mesmerized by the decorations.
“Mommy, look at this place! I love the Halloween party!” All of a sudden, Halloween was okay. That is, until we got home.
Wednesday, October 31, 2012
Curious about this play...
Came across an article about this show, "Falling," currently playing Off Broadway. If I don't get to New York soon, I'd love to see this come to Chicago. I like the angle that it's not the sanitized version of autism - it's a reflection of the reality of it all.
http://www.ageofautism.com/2012/10/falling-a-play-about-autisms-less-fundraiser-worthy-side-.html?utm_source=feedburner&utm_medium=email&utm_campaign=Feed%3A+ageofautism+%28AGE+OF+AUTISM%29
The show's website is: fallingplay.com
http://www.ageofautism.com/2012/10/falling-a-play-about-autisms-less-fundraiser-worthy-side-.html?utm_source=feedburner&utm_medium=email&utm_campaign=Feed%3A+ageofautism+%28AGE+OF+AUTISM%29
The show's website is: fallingplay.com
Monday, October 29, 2012
Halloween!
Happy Halloween!
http://www.budgettravel.com/slideshow/photos-haunted-theaters,12550/#anchorTop
http://www.foodandwine.com/slideshows/americas-haunted-restaurants-and-hotels?xid=DISH102912AmericasHauntedRestaurants
http://www.flavorwire.com/341493/an-essential-stormy-weather-reading-list?utm_source=Sailthru&utm_medium=email&utm_term=Day%201%20%28Monday%29&utm_campaign=Unified%20Mailer#2
http://www.budgettravel.com/slideshow/photos-haunted-theaters,12550/#anchorTop
http://www.foodandwine.com/slideshows/americas-haunted-restaurants-and-hotels?xid=DISH102912AmericasHauntedRestaurants
http://www.flavorwire.com/341493/an-essential-stormy-weather-reading-list?utm_source=Sailthru&utm_medium=email&utm_term=Day%201%20%28Monday%29&utm_campaign=Unified%20Mailer#2
Thursday, October 18, 2012
Forum for Parents of Young Adults w/Developmental Disabilities this Monday in Naperville, IL
One of my fellow ACE (my boys' school) moms is on the panel for this informative forum:
NapervilleWorks presents:
“Make the Day Matter”
A Forum for Parents of Young
Adults
With Developmental
Disabilities:
Scheduling Life Beyond Transition
Come to hear from families in our area
about the activities their young adults with developmental disabilities are
engaged in. Also, get tools and techniques for developing a positive and
purposeful schedule of activities for your student after transition.
Monday, October 22, 2012
12:00 – 2:00 p.m.
City Council Chambers
Naperville Municipal Center
400 South Eagle Street Naperville, IL 60540
630-842-7634
Sunday, October 7, 2012
Eeeeeeee, just another day!
My kids are so loud, it makes me thankful for my hearing loss.
I no longer like the letter E, as it is screeched all day long.
Things must be thrown behind things, such as beds, couches, cabinets, dressers, tvs and the desk I am attempting to sit at.
Toilet water must be splashed everywhere regardless of what nastiness is in the toilet.
The kitchen must have an inch of water on the floor. Little guy is in his room while I can mop the kitchen. Surprised Peeping Paula (our nosy neighbor who looks like Paula Deen, no offense to Paula) isn't hanging out her window on the phone, pointing in our direction.
Wow, the door kicking just got quite loud. Wonder if the neighbors will call the police because this accomplishes...?
I have my questions prepared for the next time the police are called: And they called you because...? Your coming here will accomplish...? Your being here solves what problem, how? Of course, all done in the snotty voice of the David Spade character who worked for, I think, Dick Clark...and he would know you from...?
But I won $1 in the lottery today! Woohoo!
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