Interesting article on the autistic struggle to understand social skills and how autistic struggles differ in different countries and cultures.
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http://www.ageofautism.com/2012/08/possible-explanations-behind-the-autistic-struggle-to-understand-social-skills.html?utm_source=feedburner&utm_medium=email&utm_campaign=Feed%3A+ageofautism+%28AGE+OF+AUTISM%29&utm_content=Yahoo%21+Mail
Those of us who are living with autism are all on this ride together. Traveling, dining and any other activities with special needs kids are challenging. I had trouble finding advice, so I decided to write about the things I want to read about. This is a place of thoughts, ideas, feedback, venting and most of all, support.
Monday, August 13, 2012
Orlando Part 5
On to our trip to the Magic Kingdom . We decided to only make one major park visit
this trip. The tickets were roughly $85
per adult and $80 per child. The
multi-day and multi-park discounts were not that great a deal, in my opinion,
unless you planned on hitting multiple parks per day over several days. That scenario was not reasonable for us with
two special needs kids and my dad in a wheelchair.
We took the Monorail from our
hotel to Magic Kingdom .
Great – down the elevator two floors from our room at the Contemporary
to the Monorail boarding platform. The
ride was free of charge. A train came
quickly and there was plenty of room for everyone to sit. The Monorail stopped at two other hotels, the
Polynesian and the Grand Floridian, both lovely looking hotels. The Monorail also stops at Epcot and a bus
station where you can connect to a bus to take to Hollywood Studios (formerly
MGM), Animal Kingdom and other Disney attractions. If staying at the Contemporary, the Magic Kingdom
is about a 7 or 8 block walk, but since my kids are obsessed with trains and
just the sheer novelty of riding on the Disney Monorail, we took the
Monorail.
We had some trouble at
check-in. My kids aren’t very good at
waiting in line, handing someone a ticket and then going through a turnstile. The attendant kept feeding our tickets
through multiple times, then saying they weren’t valid (they were coming up
invalid because she kept feeding them through the machine).
Once inside, we got a wheelchair
for my dad and I decided to rent a stroller for Todd, even though I had his
tethering device (leash) strapped on him.
This was a good idea and the stroller was only $15 for the entire
day. We got “after 2 p.m.” tickets,
which were cheaper and I’m glad for that.
It was hot, but not as hot as it would have been earlier in the
afternoon. In the future, I would
consider “after 4 p.m.” tickets so it would be even cooler. Also, the later in the day you get there, the
closer you are to the evening Main
Street parade and the fireworks.
We went to the Guest Services
area just inside and got a disability pass.
This applied to both kids and my dad, plus the rest of our party (myself
and my brother). This was a
Godsend. We barely had to wait for
anything and the few times we did, the wait was indoors with air conditioning.
The Disney parks allow you to
bring in your own bottles of water. That
and the big buffet lunch we had prior to going to the park really tided us
over. We ended up only having to buy a
few large Diet Pepsis to share.
The kids both really enjoyed the
teacup ride, as well as the carousel.
Todd could stay on the carousel all day and be happy. We went on the “It’s a Small World” boat
ride, classic thing to do at Disney.
Sean loved it. Todd kept trying
to jump overboard the entire ride. Thank
God for that leash thing. I was reminded
of the Simpsons episode where Lisa drinks the water while on the “It’s a Small
World” ride (whatever the Simpsons/Krusty version was called) and ended up
having hallucinations because the water was so contaminated.
Another Disney World classic we
visited was the Hall of the Presidents.
There was about a 20-minute wait indoors, then a 20-minute sit-down
show. The kids didn’t do too well
waiting in line, but once we were in there, they sat attentively and enjoyed
the show. At the end of the show, each
American president is mentioned in order and some more popular ones got
applause, such as Abraham Lincoln and JFK.
When Andrew Johnson’s name was mentioned, Sean started clapping, “Wooh!” Never realized he was such a fan of Andrew
Johnson and I would guess Andrew Johnson has never gotten such an enthusiastic
reaction from an audience member at Disney prior. After the show, Sean said, “I LOVE robot
presidents!”
We also waited in line for about
15 minutes to meet Mickey Mouse and have an official photo taken with him.
When Sean saw Cinderella’s
castle, he said, “that’s the castle! It’s
the Disney castle! We’re really here!” That brought a tear to my eye. I remembered when I was a kid and how I was
in awe seeing the Cinderella castle up close for the first time.
The kids really enjoyed the
outdoor show in front of the castle. It
featured all the main characters:
Mickey, Minnie, Donald, Daisy, Pluto, Goofy, Peter Pan, Wendy,
Cinderella, Snow White, Sleeping Beauty and their respective princes and
Malificent as the general baddie. I
think Captain Hook and Smee may have made an appearance as well. There were also the token cheesy theme park
dancers. Cheesy to me, but the kids
loved them and were dancing along.
Finally, the kids were tired and
overheated, so we decided to catch the fireworks from the terrace at our
hotel. We caught the Monorail back and
the kids loved the ride. So happy to
re-experience a great childhood memory through my sons’ eyes!
*Addendum - the after 2 and after 4 options are only available through the Disney Convention-Ears website.
*Addendum - the after 2 and after 4 options are only available through the Disney Convention-Ears website.
Saturday, August 4, 2012
Robin Rescues Dinner
I loved Robin Miller on Food
Network. I am bummed she is no longer on
that network nor the Cooking Channel. I
related to her concept: a very busy working mom with a busy family getting a
home-cooked meal on the table at least three weeknights. Reasonable, right? She does prep work in advance- chopping
vegetables, cooking double batches of chicken, etc. This works great for an
insomniac like me!
I bought "Robin Rescues Dinner" on
Amazon. It contains 52 weeks of menus
with instructions for each week’s prep work.
I love this part of the subtitle, “a realistic plan to get weeknight
dinners on the table.” Any working mother can relate to that.
Cool feature: the 52-week menus
are coordinated with the 52 weeks of the year, so when you pick a menu with its
coordinating week of the year, it incorporates whatever vegetables and fruits
are in season that time of year as well as taking into consideration what the
weather may be at that time, i.e., comfort food in cold weather, lighter fare in the heat.
My husband is a picky customer
and he has loved every recipe I have made from this book. This is a book you can look at over the
weekend, make your shopping list, do the prep work and know you will easily be
able to make three home cooked meals during the week for the family. The other two weekdays – I do frozen pizza or
meal-in-a-bag one night and whatever day is payday that week, order delivery!
I recommend this book – good methodology
and good recipes that make even picky eaters happy. J
Friday, August 3, 2012
Orlando Part 4
Our hotel room was on the 6th
floor. Right outside our front door, we
had a view of the monorail and directly below on the 4th floor we
could see into the gift shop called “Fantasia.”
It has an open ceiling. My
brother joked he was going to concoct some sort of zip line to swoop down there
in the night and steal toys. Very cute
store – the prices were not bad for items I have never seen in Chicago. That said – my brother bought Sean’s new
girlfriend Minnie at Publix for $8. The
same Minnie was $12.95 at Fantasia and $16.95 at the airport.
Adjacent to Fantasia is the
Fantasia Market. This place is open
nightly until 11 p.m. Right outside the
Market is the door to the terrace where you can view the Magic Kingdom nightly
fireworks show. The Market has lots of overpriced
things (you pay for convenience) that you might need in your room: Chips, popcorn, beer, wine, pop, frozen
pizza, deli stuff, brats and hot dogs for the grill (Contemporary has a grill
area for guests), tampons, first aid, you get the idea. Perfect place to get a hard or soft
drink and snack and go right out the
door to watch the lovely fireworks.
There was a Publix just a short
drive from the hotel. Always a good idea
to go to a place like that for snacks and beverages for your room. Also a good-priced place to get souvenirs. I always do that on vacation – I always make
a point to go to the local grocery store in whatever city or country I’m
in. It’s fascinating (at least to
someone like me) and a good place to stock up.
Especially when in a place like Paris or Rome – wine, cheese, chocolate,
all the gifty things you’ll want to bring home are so much cheaper at the local
grocery store or that city’s version of Wal Mart. Avoid the tourist traps and buying these
things at the airport. It’s the exact
same thing for much cheaper! Anyway, I digress.
If you can’t afford to stay at a
Disney resort, Kissimmee has a lot of affordable options. This visit was my first time staying at a
Disney resort. I will say I loved the
convenience to the parks. My first visit
to Disney World as a kid, we stayed in Kissimmee, and it was just fine. My second time, we were staying at my Uncle
Jack’s place on Longboat Key (off the coast of Sarasota) so it was an easy day
trip – about a 2 ½ to 3 hour drive. The
restaurants in Kissimmee are also more affordable. They have every chain restaurant you can find
everywhere in the United States.
Granted, when I’m in a different city, I like to eat at local businesses
and not eat at some chain I could eat at in Chicago, but sometimes it comes
down to pleasing the kids. Example: Golden Corral. The first Golden Corral I ever brought my kids
to was in Joliet, Illinois when my brother was living out there. My husband is a professional Ed Sullivan impersonator
for Beatles tribute bands (you heard that right) and he was performing at Abbey
Road on the River in Louisville, Kentucky.
We stayed at a Holiday Inn in Clarkesville, Indiana, just across the
Ohio River from Louisville and there was a Golden Corral – that was the only place the kids
would eat. As soon as I saw the sign in
Kissimmee and the kids were fussing, I said, let’s stop here! The buffet is $8 for adults and $6 for
kids. All you can eat, every kind of
food you and/or the kids might be in the mood for – pizza, pasta, chicken,
Chinese, salad bar, desserts, etc. The
one in Kissimmee had some Southern food – black-eyed peas, fried okra, fried
cream corn, peach cobbler. Yum! Here’s a tip – we filled up ourselves and the
kids at Golden Corral for next to nothing, then went to Magic Kingdom and
barely spent any money on the outrageously expensive food there. My brother went into one of the food courts
there to get some pop and said the cheapest thing on the menu was a small
chicken sandwich for $10. J
A beloved website
A beloved website - makes me feel so much better about the things my kids destroy!
http://www.shitmykidsruined.com/
http://www.shitmykidsruined.com/
Thursday, August 2, 2012
Orlando Part 3
It was evening once we were
settled in our room. We went downstairs
to the Contempo Café on the 4th floor for dinner. You order from a touch screen computer that
prints out your receipt. You then pay
the cashier and are given a beeper that lets you know when the food is ready to
be picked up at the kitchen counter. The
prices weren’t crazy and there was plenty to satisfy everyone. My brother and I had the mahi mahi sandwich,
which was really good. The kids had chicken
nuggets, burgers and fries. Disney puts
the healthy options first – the automatic side dish is fruit or veggies. You have to specify if you want fries. Also, the automatic drink choices are milk,
water or juice. You have to specify pop
if that’s what your child wants.
We went back up to the room,
where Todd promptly fell asleep. My dad
and brother decided to drive to the local Publix to buy pop and snacks for the
room. Sean and I went out on the balcony
where we had a lovely view of the nightly light show on Bay Lake . I imagine this would be extra cool to view
from one of the dinner cruise boats.
Disney songs are played loudly and there are big light-up creatures – a dinosaur,
alligator, octopus, dolphins and King Neptune in a chariot pulled by sea horses.
The lights change into American flags
for the finale of patriotic music. Sean
loved it.
Sean absolutely loved the water
play area and especially the water slide.
That is putting it mildly. Every
day, I put aside some time for him to go to the water slide. The first day we went, he just took off and
ran up the stairs and went down the slide before I could get to the other end
in the pool to catch him. A lifeguard
promptly jumped in and grabbed him. I
was only about two feet behind the lifeguard.
I got Sean out of the water and over to where the life vests are kept to
put one on him. He had also gone down
the slide with his water shoes still on.
This isn’t recommended because the shoes stick to the sides of the
slide. The lifeguard supervisor came
over to us to make sure Sean was okay. A
bit embarrassing, but I’m glad they are so thorough when it comes to water
safety. Sean was subsequently
reprimanded for going down head first, backwards and not waiting for the green
light at the top of the slide. I’ve been
told by his recreational therapist at school that he has no fear in the water
and tends to make bold choices that aren’t safety-friendly. The only way I was able to get him out of the
pool and away from the water slide was a Minnie sighting – I thought I saw
Minnie heading up to our room or to the lobby.
Minnie is his new girlfriend! My
brother bought him a small stuffed Minnie doll at Publix and Sean gave her
kisses the entire trip.
Wednesday, August 1, 2012
Orlando Part 2
I gave Todd some chewable melatonin about 15 minutes before boarding. This worked out perfectly. He dozed off just as the plane was taking off and woke up right before we landed in Orlando.
Sean did great on the plane. He read books, ate the pretzels provided by the flight attendant, as well as the Goldfish crackers, string cheese and granola bars I put in his backpack.
When we arrived in Orlando, I made the decision to take Todd on the Magic Express, which was a complimentary service through our hotel, Disney Contemporary Resort. Todd has a very hard time waiting, so I anticipated going to baggage claim, then taking a shuttle to the rental car place, then waiting for the rental car, would be too much for him. Ugh. There was nothing magical about the Magic Express. We had to wait in line for a check-in that took FOREVER then wait FOREVER for the bus to finally show up. I assume my use of italics and capital letters communicates what a bad experience that was. Todd was hungry, thirsty, crying, yelling, miserable. Even though they were speaking in Spanish, I could tell the people in front of us in line were talking about us. They shut up when I gave them a stare of death. At this point, I was in tears, too. The bus finally showed up. I think I made a comment, “I hate Disney already” or something. Once we were on the bus, Todd was fine. He loves riding in any vehicle. The ride took about 45 minutes, but I think I needed that time to calm myself down.
We arrived at Disney Contemporary. I was bracing myself for another long check-in wait. This time, I was pleasantly surprised. My brother called ahead to see if Todd and I could check-in ahead of the rest of our party. The woman who checked us in was so nice and accommodating – she noticed Todd was having a hard time, so she said she wouldn’t give me the usual lengthy check-in spiel and just gave us the key cards and a map to our room.
Since the Magic Express experience took so long, my brother, dad and older son arrived right behind us.
Our room was lovely. It was located on the sixth floor of the Contemporary Tower. We had a lovely view of Bay Lake and right outside our door, you could look down and see the monorail coming and going.
I was initially concerned about the room because there was a lot of marble and sharp edges. However, no injuries occurred. It was decorated in an appropriately contemporary style, very Asian-esque. Surprisingly, we were unable to get Disney Jr. on the TV. The doors were child-safety-friendly – a top lock high up on the front door as well as on the balcony door. There were two sinks in the bathroom – very wide and flat, but not very deep. Todd spent many an hour turning the water on and off and splashing in the sink. Because of the shape of the sinks, hardly any water splashed to the floor, so there was no slipping hazard there. There was a sliding door to the bathroom and then another sliding door to the toilet, which was in a separate little room, like a European WC. On one hand it was good, because the kids couldn’t lock themselves in the bathroom, but on the other hand, Todd kept sliding it back and forth to the point we were worried he would crack one of the doors, but he didn’t. The two closets in the entryway opened and closed with long vertical handles. Todd loved opening and closing these doors. He also loved pressing the buttons of the safe that was in one of the closets. We got a noise complaint over that. (Yay, just like home!) We figured out a way to twist and tie towels around the door handles so he couldn’t open the doors. Childproofing, just like home!
Sean did great on the plane. He read books, ate the pretzels provided by the flight attendant, as well as the Goldfish crackers, string cheese and granola bars I put in his backpack.
When we arrived in Orlando, I made the decision to take Todd on the Magic Express, which was a complimentary service through our hotel, Disney Contemporary Resort. Todd has a very hard time waiting, so I anticipated going to baggage claim, then taking a shuttle to the rental car place, then waiting for the rental car, would be too much for him. Ugh. There was nothing magical about the Magic Express. We had to wait in line for a check-in that took FOREVER then wait FOREVER for the bus to finally show up. I assume my use of italics and capital letters communicates what a bad experience that was. Todd was hungry, thirsty, crying, yelling, miserable. Even though they were speaking in Spanish, I could tell the people in front of us in line were talking about us. They shut up when I gave them a stare of death. At this point, I was in tears, too. The bus finally showed up. I think I made a comment, “I hate Disney already” or something. Once we were on the bus, Todd was fine. He loves riding in any vehicle. The ride took about 45 minutes, but I think I needed that time to calm myself down.
We arrived at Disney Contemporary. I was bracing myself for another long check-in wait. This time, I was pleasantly surprised. My brother called ahead to see if Todd and I could check-in ahead of the rest of our party. The woman who checked us in was so nice and accommodating – she noticed Todd was having a hard time, so she said she wouldn’t give me the usual lengthy check-in spiel and just gave us the key cards and a map to our room.
Since the Magic Express experience took so long, my brother, dad and older son arrived right behind us.
Our room was lovely. It was located on the sixth floor of the Contemporary Tower. We had a lovely view of Bay Lake and right outside our door, you could look down and see the monorail coming and going.
I was initially concerned about the room because there was a lot of marble and sharp edges. However, no injuries occurred. It was decorated in an appropriately contemporary style, very Asian-esque. Surprisingly, we were unable to get Disney Jr. on the TV. The doors were child-safety-friendly – a top lock high up on the front door as well as on the balcony door. There were two sinks in the bathroom – very wide and flat, but not very deep. Todd spent many an hour turning the water on and off and splashing in the sink. Because of the shape of the sinks, hardly any water splashed to the floor, so there was no slipping hazard there. There was a sliding door to the bathroom and then another sliding door to the toilet, which was in a separate little room, like a European WC. On one hand it was good, because the kids couldn’t lock themselves in the bathroom, but on the other hand, Todd kept sliding it back and forth to the point we were worried he would crack one of the doors, but he didn’t. The two closets in the entryway opened and closed with long vertical handles. Todd loved opening and closing these doors. He also loved pressing the buttons of the safe that was in one of the closets. We got a noise complaint over that. (Yay, just like home!) We figured out a way to twist and tie towels around the door handles so he couldn’t open the doors. Childproofing, just like home!
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