This is a great article - raging ADHD behaviors are so common with ASD kids...I checked out the website - several other interesting articles.
ADHD in Young Children: Unlocking the Secrets to Good Behavior
Those of us who are living with autism are all on this ride together. Traveling, dining and any other activities with special needs kids are challenging. I had trouble finding advice, so I decided to write about the things I want to read about. This is a place of thoughts, ideas, feedback, venting and most of all, support.
Wednesday, November 21, 2012
Tuesday, November 13, 2012
Monday, November 12, 2012
Music Man
I am once again blown away by the
kindness and tolerance directed at my child in yet another show, "Music Man," performed with the Beverly Theatre Guild. My husband and I know too well that Sean can
be hard to understand. The theatre
community is the polar opposite of our neighbors. Theatre people “get” him
better than the general public. When he exhibits "behaviors," they don't judge and he works through what he needs to work through. I think those with artistic abilities exist on
a different level and that level is closer to the wavelength autistics are
on. He has fit right in as a kindred
spirit with the theatre crowd. His teacher sent me a note asking if he was in
another play because he was talking about rehearsal.
He's become quite comfortable having his photo taken. Lots of photos are taken during the production of a show. I received a phone call from his school asking if he could be videotaped as a demo to show other students how to have their picture taken.
He was fascinated with the
technical aspects of the show. During
tech rehearsals, he was mesmerized by the lighting, sound and set activities
and the communications between the individual crews.
We have so far been lucky in
shows to have young people willing and able to “Sean wrangle” when my husband
and I are on stage or changing costumes.
The other kids, especially the teenagers, are wonderful to him.
Sean was hilarious on the ride
home. During both “Wizard of Oz” and “Music
Man,” he sang songs from the show in the correct key, a cappella, in the car. He would imitate solos exactly the way
the actor in the show sang them – even if they were off-key, he would sing the
exact wrong notes that they sang. He
also chose different characters to act out at home – one day Mayor Shinn, the
next Charlie Cowell, then Marcellus, Harold Hill. Spot on imitations there, too.
He’s developed a better sense of
sequence through both school and theatre.
A member of the costume crew was asked to help him with a costume
change. She came backstage, saying he
wouldn’t let her change him at that point.
Turns out, she was told the wrong time to change him, it wasn’t time
yet, he was correct!
There was a section during the “76
Trombones” dance break where he was center stage. Sometimes he would do the dance, sometimes
dance while looking at other dancers’ feet behind him, sometimes just stand
there and grin at the audience. When he
would just stand there, the conductor and orchestra would encourage him to keep
dancing. The last few performances, he just
broke out and did his own freestyle dance at this point in the number. That got a good reaction from the crowd! The smallest cast member can get usually away
with stuff like that.
As in “Wizard of Oz,” a big group
of teachers and therapists from Sean’s school came to see him perform. I was so happy for them to be there, not just
because it made Sean happy, but I’m glad they could see Sean up on stage. When he came to Elim School ,
he could barely speak a few words and was so easily distracted he couldn’t
focus on anything for longer than a few seconds. He was lost in a fog. Now, several years later, he’s able to sing,
dance and act in a show. The staff at
his school had a lot to do with that.
They work very hard with him and what a lovely result!
In the end, Sean once again had a
terrific theatre experience. I don’t
believe our director or music director have a background dealing with special
needs children, however, they were absolutely wonderful to Sean. They saw past his difficulties through to his
abilities and spirit. Our second to last performance, he came offstage after
curtain call, threw his arms up in the air and shouted, “I LOVE THIS PLACE!” I think that sums up his experience.
Our next show is “Scrooge &
Marley,” with Opening Night Arts Group, to be performed at Trinity College
in Palos Heights , Illinois the first weekend of December. Sean will be one of the Cratchit
children. I will be playing Mrs.
Cratchit, so if he calls me Mama on stage, no biggie, I am his mama in this
show. I have been working with him on his line: “The goose has arrived to be
eaten.” So far, he says, “The goose is
here and we eat it.” Close enough! Either way, I’m sure the line delivery will be
received well. More theatre posts to
come!
Tuesday, November 6, 2012
Thursday, November 1, 2012
Halloween 2012 Part 2
You know those moms who
meticulously plan every detail of their child’s costume starting in September? I’m not that mom. I wish I was that woman who handwrites lovely
thank you notes in a timely fashion and brings appropriately-themed hostess
gifts to every gathering. I’m not and
neither was my mother. Those women must
know about a secret eighth day of the week that the rest of us don’t know about
and that’s where they find the time to be all Martha Stewart. Sean wore a Spiderman costume for his first
Halloween that I bought online. Second
year, Todd joined us and the boys were the Scarecrow and Lion, costumes bought
online. Next, Sean was Thomas the Train (bought
on the Thomas website) and Todd was his engineer – found blue and white striped
overalls, a red bandana for his neck and a blue cap.
The following year, I was way
ahead. Every August, we go to the Day
Out with Thomas at the Illinois Railway Museum
in Union , Illinois . Nearby, there is an old-school theme park
called Wild West Town . Those cheesy low-budget theme parks are a
rarity these days and that’s a shame. I
was sad when Kiddieland in Melrose
Park , Illinois
closed. At least I got to bring my kids
to Kiddieland once. Anyway, in the gift
shop of Wild West Town, they had little Civil War uniforms. I bought one gray and one blue. On Halloween, I just drew makeup mustaches
and beard stubble on them and that was that.
This year, Sean decided he wasn’t
afraid of Halloween and wanted to dress up at about 9:00 p.m. on October 30th. I was still skeptical, knowing he could
easily change his mind by the time the bus arrived at 7:30 a.m. on October 31st.
Thank God for my friend Julie who
gave me a bunch of costumes and accessories that her children outgrew. This was in the summer of 2011. This collection has saved my butt in providing
me with costume options for my kids two years in a row now. Yes, I put together their costumes Halloween
morning. Last year, Sean was also afraid
until Halloween morning and Todd was having texture issues in regard to
clothing. Last year, Sean agreed to be
Woody from Toy Story at the last minute and in the costume collection, I also
found a soft gown, hat and a wand, so Todd was Mickey the Wizard from Fantasia.
Back to this year. First, I made sure
Sean was still up for wearing a costume.
He was. Yay! I found a velvet jacket, black knickers, a
pirate hat and a hook. Captain Hook! He was thrilled because he currently loves “Jake
and the Neverland Pirates” on Disney Junior.
He also said his teachers would be “so excited to see my costume!” Todd
was amiable to a costume as well. I
found bits and pieces of pirate wear and pieces of what appeared to be a Mulan
costume, so Todd was a pirate-ninja hybrid.
He’s non-verbal, but was in high spirits – giggling and flapping all the
way to the school bus, so I know he was happy.
Even if they weren’t going to
wear costumes, I bought four bags of candy to send for the school Halloween
party. I also bought festive-colored
baggies and sticker tags to put together gift bags. I was so tired the night before and since we
were throwing costumes together that morning, I just put the unopened bags in
their backpacks. I felt like such a
terrible non-Martha Stewart mom!
They had a great party at school
and went trick-or-treating around the school building to different classrooms
and offices.
Tim and the kids picked me up at
the train that evening. They love
watching the train pull in and then see me getting off the train. When my train leaves our station, Sean says, “the
train is now taking the nudders to their home, then going to sleep at Tidmouth
Sheds.”
They had a motherload of
candy. They were allowed to eat some and
the rest was hidden to be doled out gradually.
Sean has a habit of literally eating (anything, not just candy) until he
makes himself sick, so you need to cut him off.
After dinner (pizza and tater
tots, two of their favorite things), we all watched “Addams Family Values,” “The
Simpsons” and “It’s the Great Pumpkin, Charlie Brown.” The kids think that Snoopy is hilarious and
especially enjoyed the Red Baron sections of that tv special.
The upside of not putting up
decorations this year is I don’t have any to take down today. On to Thanksgiving. I refuse to put up anything Christmas until
Thanksgiving is over. I refuse to skip
over that holiday. What a wonderful
holiday that’s all about gratitude for the blessings in our lives! Since I didn’t get to decorate for Halloween,
I may go a little crazy with turkey and Pilgrim decorations this year. We are spending Thanksgiving in the Wisconsin
Dells this year at the Chula Vista Resort.
Since we will be eating at a restaurant on Thanksgiving Day, I will be
cooking a traditional Thanksgiving dinner at our place Sunday of Thanksgiving
weekend.
A blessed November to all! I will continue to post on events as they occur!
Thanks for reading! J
Halloween 2012 Part 1
Well, here we are again in November. Where do the months go? Yesterday, I reflected on Halloweens
past. When I was a kid, my mom would
make my costume. She loved the fact that
whatever character I chose to be, I wanted the glamour angle. If I was a witch, it had to be a glamorous
witch. If I was a gypsy, I had to be a
beautiful, glamorous gypsy. I also loved
girly-girl choices like can-can girl, princess, queen, Princess Leia,
ballerina. All three kids in my family
were bunnies for our first Halloween.
Mom would just sew a puff tail on a blanket sleeper and sew ears onto a
hat. Done! We’re still in our condo that won’t sell, so
we never have any trick or treaters.
There’s also no sidewalk on most of our street, so we have to drive the
kids to trick or treat, usually to the homes of family and friends.
Last year Sean was scared of some
things Halloween. This year he was
scared of all things Halloween. He
wouldn’t let me put up our usual decorations and orange lights. I tried to tell him wearing a Halloween
costume is no different from when he wears a costume in a play. Nope.
Couldn’t even bribe him with the promise of candy and other treats. He has, however, been enjoying the
Halloween-themed episodes of his favorite shows on Nick and Disney Junior. He even enjoyed a series featuring a ghost
named Spookly (reminiscent of Casper
the Friendly Ghost) and his friend the Square Pumpkin.
This past weekend (and this
coming weekend, stay tuned for shameless plug to follow in another post), my
husband, Sean and I were (are) in a production of “Music Man. ” After the Sunday matinee last week, there was
a Halloween-themed cast party. I was
worried. We got there and Sean was
completely mesmerized by the decorations.
“Mommy, look at this place! I love the Halloween party!” All of a sudden, Halloween was okay. That is, until we got home.
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